“You’re Too Far Gone”

Author: Charmaine Skillman Charmaine Skillman
I was diagnosed with pseudomyxoma peritonei (PMP) & appendix cancer 24 years ago. Before the Internet was full of medical information, it was a struggle to understand my condition, to find a specialist, and to pursue treatment. This definitely impeded my ability to get optimal treatment. After many years, my local oncologist said I needed to step up my treatment – a huge, complex surgery with heated chemo applied inside my abdomen (HIPEC). I looked to the one specialist in my state — but, after trying for an appointment, his staff said he would not see me because, in their words, “you’re too far gone.” This felt like a death sentence, but I tried an out of state surgeon, a leader known internationally. He took my case, performed the surgery & HIPEC, and I have lived 13 years without active disease. Now, I volunteer with a patient support group, PMP Pals, that helped me find the right treatment. Patient groups are essential; thanks to Global Genes for supporting their work.