The CCHS Family Network’s focus is primarily on education and support of our families and CCHS patients, inter-family and family-physician communication, and supporting and facilitating CCHS research. The purpose of the CCHS Family Network is to assist each other, and especially new CCHS families, in coping with issues that arise in living with a family member who is technology (ventilator) dependent and whose respiratory status must be regularly monitored. We work to share patient experiences, provide information about healthcare strategies, new technologies and CCHS research and treatment.

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