Our mission is to save the lives of our boys by bringing about awareness through education–to our community and medical professionals–about the early onset symptoms of X-ALD (Adrenoleukodystrophy), the simple diagnostic blood test, and treatments.
We also have information about the adult onset, AMN (Adrenomyeloneuropathy).
Our current goal is to get ALD newborn screening added to the Recommended Uniform Screening Panel (RUSP) to allow for early diagnosis and life saving interventive treatment for all at risk babies in the US.