We C.A.R.E.™ – The MLD Foundation’s global mission is reflected in four areas of purpose that start with people and families … facilitating Compassion, increasing Awareness, influencing Research, and promoting Education for metachromatic leukodystrophy.

We are active in rare disease advocacy, newborn screening, registries, FDA policy, and “educate” regularly on Capitol Hill.

The MLD Foundation collaborates with other leukodystrophy and lysosomal disease organizations globally. We are also quite active in global rare disease issues.