The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
•We pursue the most innovative research and make sure that it receives proper funding.
•We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
•We provide relentless support to families, caregivers, and healthcare providers.
We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.