April 1, 2016
RARECast: Filmmaker Turns Lens on the Rare Disease Community
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November 17, 2014
CBS Reports: Twins With Rare Genetic Disorder Could Hold Clue to Cure Ebola
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November 18, 2013
“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece on the Hempel Family Saga
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June 23, 2011
WSJ Health Blog Reports – Results in Mice May Help Shape Clinical Trial for Children With Rare Fatal Disease
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September 24, 2010
Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Administration Into the Brains of Twins with Rare and Deadly Cholesterol Disease
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April 21, 2009
A Mom Brokers Treatment For Her Twins' Rare and Fatal Illness
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