June 6, 2017
Amicus Therapeutics Receives Rare Pediatric Disease Designation for SD-101 for Patients with Epidermolysis Bullosa
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June 11, 2015
Global Genes to Host Fourth Annual Tribute to Champions of Hope Gala and Patient Advocacy Summit
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October 23, 2014
New RARE Toolkit “Searching For Answers: Contacting Biopharmaceutical Companies Effectively”
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August 22, 2014
Amicus Therapeutics Announces Positive Phase 3 Data from Fabry Monotherapy Study
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May 5, 2014
Amicus Announces Positive Data in First Fabry Phase 3 Study
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March 11, 2014
JPMorgan Dad Turns Biotech CEO in Quest to Save his Son
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September 25, 2013
Rare Disease Congressional Caucus Briefing Co-Hosted by Shire and RDLA
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April 28, 2011
CBI ANNOUNCES PARTNERSHIP WITH CHILDREN’S RARE DISEASE NETWORK AND THE GLOBAL JEANS PROJECT
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February 1, 2010
'Denim Jean' Ribbon Unveiled To Promote Rare Disease Awareness
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