June 26, 2012
Wall Street Journal Goes In Depth On Tay-Sachs – Rare Disease Does Not Only Afflict Jewish, But Irish Community
June 23, 2011
WSJ Health Blog Reports – Results in Mice May Help Shape Clinical Trial for Children With Rare Fatal Disease
October 5, 2010
Do We Need a War on Rare Diseases?
October 4, 2010
Increased Patient Participation in the Fight Against Rare Disease – IOM Report
June 21, 2010
FDA Database Aims to Spark Orphan-Disease Drug Development
April 13, 2010
Sharing information moves science ahead.