March 3, 2014
Repurposing Music and Medicine to Deliver Hope on Rare Disease Day 2014
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September 25, 2013
Rare Disease Congressional Caucus Briefing Co-Hosted by Shire and RDLA
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July 2, 2012
CoRDS Registry: Collaboration, Partnerships and Opportunity for Rare Diseases
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June 6, 2010
International Batten Disease Awareness Weekend (June 4-6)
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