June 1, 2017
Run to The Light: A Sibling’s Life-Long Mission to Defeat Batten Disease
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May 11, 2017
Prince Harry Visits Siblings with CNL2 Batten Disease in London Hospital
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May 1, 2017
Promising Week for Treatment of Form of Batten Disease: Approvals Granted by FDA and Europe’s CHMP
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November 8, 2016
Boy with Batten Disease Pens Last Letter to Friends
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October 21, 2016
RARECast: Abeona Advancing Pipeline of Gene Therapies for Rare Diseases
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October 17, 2016
Data for BioMarin’s ERT for CLN2 (Batten Disease) is Promising. Very Promising.
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July 7, 2016
Batten Disease Family Conference
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June 11, 2016
PEOPLE: Parents Fund Breakthrough Therapy That May Treat Daughters’ Fatal Brain Disorder
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May 3, 2016
Batten Awareness Weekend Virtual 5K on June 4th and 5th
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October 14, 2015
North Carolina Woman to Run Athens Half Marathon in 50-State Quest to Save Millions Fighting from a Rare Disease
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October 12, 2015
Batten Disease Benefit in Naperville Raises $350,000
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September 13, 2015
Boise Family Focused on Here-and-Now After Daughter’s Batten Diagnosis
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