August 4, 2016
Family Copes with Progression of Batten’s Disease in 8-Year-Old
Read More
June 25, 2014
Catching Up With 3 Rare Disease Families
Read More
December 11, 2013
Some Place I Can’t Describe: Blindfolded Run for Taylor with Batten Disease
Read More
October 31, 2013
NBC’s The Voice’s Sam Cerniglia Speaks About His Family’s Connection to Rare Disease
Read More
October 5, 2013
New Contestant on “The Voice” Sings for Sisters With Rare Disease
Read More
March 5, 2013
Parents Raise Awareness About Rare Diseases
Read More
February 21, 2013
Barrington 8-Year-Old Inspires Rare Disease Research
Read More
January 30, 2012
Blog Hop for Rare Disease Day – Please Read, Share and Raise Awareness!
Read More
January 4, 2011
Kids Helping Kids – Denim Ribbon’s being made to support World Rare Disease Day!
Read More
September 1, 2010
The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition
Read More
X