April 25, 2017
Cutting Edge Gene Therapy Provides Hope for Patients with Inherited Eye Conditions
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September 27, 2016
Home Depot Employees Create Innovative Walker for Boy with Norrie Disease
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June 11, 2016
PEOPLE: Parents Fund Breakthrough Therapy That May Treat Daughters’ Fatal Brain Disorder
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February 13, 2014
I am Ignacio and This is my Story of Life With Idiopathic Intracraneal Hypertention
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September 14, 2012
Jack’s Body is Tired and Broken From Osteoporosis Pseudo-Glioma Syndrome But His Spirit Remains Strong
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August 5, 2012
Genetic Form of Retinitis Pigmentosa with CRB1 Gene Mutation Afflicts 8 Year Old Gracyn
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August 2, 2012
Newly Wed Mom Battles Idiopathic Intracranial Hypertension and Raises Awarness For Rare Disease
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July 31, 2012
From Healthy Baby to Terminal: Building Memories Despite Brook’s Rare and Fatal Tay-Sachs Disease Diagnosis
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