June 27, 2017
Tunnel Vision, Headaches Lead to Rare Diagnosis of Paroxysmal Nocturnal Hemoglobinuria
Read More
March 16, 2017
RDR: Patient, Police and Fire Fighters ‘Shake It Off’ for Rare Disease
Read More
November 27, 2016
You May Be The One To Save Alex’s Life
Read More
August 5, 2016
27-Year-Old with IPEX Syndrome Waiting on Bone Marrow Transplant
Read More
June 20, 2016
Sharing America’s Marrow: A Road Trip
Read More
June 9, 2016
Like a Lion with The Pride, Always Remember to Roar
Read More
June 8, 2016
Samuel’s Story: Our Little Bumblebee
Read More
March 4, 2016
Hurler Syndrome: My Son is My Hero
Read More
November 19, 2015
Teen Receives Bone Marrow Transplant, Hopes to Return to Society
Read More
August 11, 2015
Girl Recovers From Bone Marrow Transplant After Dyskeratosis Congenita Diagnosis
Read More
October 9, 2014
Bone Marrow Transplant Needed for 11-Year-Old with CARD9
Read More
January 9, 2014
FSU Coach’s Most Bitter Rival? His Son’s Deadly Disease: Fanconi Anemia
Read More
Load More
X