Tag: CADASIL Association

A total of 3 posts are filed under CADASIL Association
Rare Disease During the Holidays: How Much Can You Handle?
by Janet Mills My first Christmas season knowing I had CADASIL (a rare genetic neurological disease with no treatment) was bittersweet.… Continue Reading
What I Hope to Get From Attending the Global Genes Rare Patient Advocacy Summit
By Janet Mills As I count down the days before I leave Wyoming to attend the Global Genes Patient Advocacy Summit and Champions of Hope Gala… Continue Reading
The Stigma of Rare Disease: How Do You Tell People About Your Condition?
Many rare diseases, like my own, have hard-to-pronounce names that evoke fear or boredom from people first hearing them. In my experience,… Continue Reading
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