May 18, 2022
Managing Your Mental Health: Rare Disease Affects Beyond the Body
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April 26, 2022
Christina Hartman: Rare Mom, Advocate, Professional
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April 25, 2022
Caroline Loewy: Rare Mom, Advocate, Non-Profit Extraordinaire
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April 24, 2022
John Crowley: Rare Dad, Advocate, Researcher, Entrepreneur
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April 24, 2022
Irie Long: Rare Partner & Advocate
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April 23, 2022
Effie Parks: Rare Mom, Podcaster for Once Upon a Gene
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April 22, 2022
Daniel DeFabio: Rare Dad, Filmmaker, Advocate
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November 6, 2015
Diaries of a First-Time Caregiver: This is What We Do Now
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December 19, 2013
The Spousal Caregiver: My Holiday Wish List
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