June 12, 2017
SCOPE on the Story of Carrie Ostrea: How a Mom Became a Rare Disease Advocate
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April 30, 2016
Introducing the Path To Hope Campaign in Response to FDA Decision on Eteplirsen
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June 19, 2015
Meet Me in St. Louie with Global Genes: My Experience at the aHUS Meet-Up
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April 16, 2015
aHUS Meet-Up: What’s on the Agenda?
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January 1, 2014
World Rare Disease Day Wrap-Up: The History
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December 10, 2013
World Rare Disease Day 2014 Planning Webinar: Tomorrow at 11:00AM (PT)
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November 28, 2013
What We Are Thankful for at Global Genes
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April 10, 2013
Rare Disease Impact Report Quantifies Patient and Caregiver Challenges
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February 27, 2013
Rare Disease Legislative Conference Overview
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March 16, 2011
Kids Get Community Service Lesson – Vanderburg Students Make Ribbons and Bracelets For Rare Disease Day
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February 24, 2011
Nevada Students Prepare To Raise Awareness for Rare Disease Day – Kids Helping Kids!
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August 23, 2010
Thank you Frances Perraudin – YES, It Is Time The World Pays Attention To Rare Disease!
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