March 23, 2018
A Task for Tyler- Finding Treatments for SSADH and Hypotonia
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March 7, 2018
5 Things I’ve Learned About Living With a Rare Disease
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April 19, 2012
Rare Pictures of Hope™ – Submit Your Hope Stories and Photos Today!
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February 8, 2012
Spooner Family Searches For Diagnosis For Daughters Rare Disease
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January 18, 2012
CNN Health – Mom claims in viral blog that disabled child denied transplant
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January 12, 2012
Improving Drugs and Biologics for Children – Washington DC Briefing
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December 19, 2011
Costs of Caring for Children with Rare Disease: Online Survey
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December 13, 2011
Brad Paisley Lends Voice to New Song “Hard Life” to benefit A-T Children’s Project
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November 15, 2011
Enter to win an iPod Touch through the EveryLife Art Contest!
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November 10, 2011
Cal-State Fullerton Students Champion RARE Disease
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September 6, 2011
Partners for Humanity – Vote for Charleston | Orwig
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June 15, 2011
Free Summer Conference for Young Adults Living with Metobolic/Genetic Conditions
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