Tag: children’s rare diseases

A total of 36 posts are filed under children’s rare diseases
Cal-State Fullerton Students Champion RARE Disease
We are a group of five seniors at Cal-State University, Fullerton studying Communications – Public Relations.  As part of our capstone… Continue Reading
Partners for Humanity – Vote for Charleston | Orwig
Charleston| Orwig along with SeventhStreet Studios developed a creative ad through Partners for Humanity for the Global Genes Project.… Continue Reading
Free Summer Conference for Young Adults Living with Metobolic/Genetic Conditions
The Face Forward is for young adults with rare genetic, metabolic, and mitochondrial conditions. The mission of the project is to develop… Continue Reading
Batten Disease Awareness Weekend Bringing Hope for Children with a Fatal Disease—and No Cure in Sight
June 1, 2011 (Reynoldsburg, OH) – Batten Disease Support and Research Association (BDSRA) is holding its 3rd annual Batten Disease… Continue Reading
Participants from all over the country converge on Southern California to lay the groundwork for the Global Genes Project’s continued… Continue Reading
Occidental College Soccer Team promotes the Global Genes Project Wear That You Care campaign
The Occidental College women’s soccer team located in Los Angeles, CA, came together to support the Global Genes Project and the blue jean… Continue Reading
Global Genes Project and 46NYC Launch ‘Treat46le’ T-Shirt For Rare Disease Awareness
Treat46le T-shirt Honors Millions of Rare Disease Patients Living Without Hope 46NYC (www.46nyc.com) is helping raise awareness for an… Continue Reading