November 18, 2013
“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece on the Hempel Family Saga
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August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
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June 27, 2011
Nature.com Reports – Rare Disease Studies Seek Online Giving
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June 23, 2011
WSJ Health Blog Reports – Results in Mice May Help Shape Clinical Trial for Children With Rare Fatal Disease
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April 25, 2011
PARENT DRIVEN RESEARCH – Innovations from the trenches!
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January 4, 2011
Kids Helping Kids – Denim Ribbon’s being made to support World Rare Disease Day!
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September 24, 2010
Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Administration Into the Brains of Twins with Rare and Deadly Cholesterol Disease
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March 27, 2009
California Life Sciences Day 2009 – Meetings at California State Capital In Sacramento
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