November 18, 2013
“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece on the Hempel Family Saga
August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
June 27, 2011
Nature.com Reports – Rare Disease Studies Seek Online Giving
June 23, 2011
WSJ Health Blog Reports – Results in Mice May Help Shape Clinical Trial for Children With Rare Fatal Disease
April 25, 2011
PARENT DRIVEN RESEARCH – Innovations from the trenches!
January 4, 2011
Kids Helping Kids – Denim Ribbon’s being made to support World Rare Disease Day!
September 24, 2010
Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Administration Into the Brains of Twins with Rare and Deadly Cholesterol Disease
March 27, 2009
California Life Sciences Day 2009 – Meetings at California State Capital In Sacramento