December 12, 2015
Powerful Words of Gratitude for Mother of Julianna Snow From Parents Who Felt Judged
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May 4, 2014
CNN Focuses on “Cleaning Up your Genetic Code” in New Feature
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May 10, 2013
“My Son Jonah’s Clock is Ticking”: Sanfilippo Syndrome on CNN
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March 2, 2013
Running in your Underwear for Rare Disease: an Unusual Fundraiser is a Great Success
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February 2, 2012
Kylie McPeak’s Story – Living Life with an Undiagnosed Rare Disease
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January 18, 2012
CNN Health – Mom claims in viral blog that disabled child denied transplant
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August 5, 2009
California Health Care Budget Crisis Threatens Life of Child Dying From Rare Disease
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June 5, 2009
CNN Story Highlights Global Problem Facing Millions Suffering From Rare Diseases
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