September 11, 2014
Allison’s Rare Breathing Disorder: Taking Life One Breathless Night at a Time
Read More
January 8, 2014
Raising a Medically Fragile Child: Zoe with Congenital Central Hypoventilation Syndrome
Read More
January 7, 2014
Unique Genes Event in Honor of Congenital Central Hypoventilation Syndrome
Read More
September 4, 2012
Living with Haddad Syndrome – Blair Battles a Rare Combination of Hirschsprung’s Disease and CCHS
Read More
March 29, 2012
Sleeping with a Ventilator Due to Congenital Central Hypoventilation Syndrome
Read More
X