November 18, 2016
RARECast: Building an International Registry for Rare Diseases
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April 6, 2015
RareCast: One Researcher’s Effort to Address a Fundamental Challenge in Rare Disease Research
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February 3, 2015
5th Annual Sanford Rare Disease Symposium on Feb 27th
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October 17, 2013
RARE Webinar: Understanding Registries, Part 2
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April 30, 2013
The Importance of Patient Advocates for Orphan Drugs
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