April 14, 2014
Our “Labeled” Child’s Name is Simon: Fighting for Treatment
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March 28, 2013
What is a “Rare Rare” Genetic Condition?
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March 1, 2013
Giving a Face to Trisomy 18: Debbie Elaborates on this Rare Condition
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February 7, 2013
The Tracking Rare Incidence Syndromes (TRIS) Project: What It Is and What It…
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