Tag: documentary

A total of 29 posts are filed under documentary
Project Alive: Documentary Series and Social Media Challenges Seek to Raise MPS Awareness
May 15 each year is known to some parents as International MPS Awareness Day. But for most people, they’ve never heard of MPS. Two recent… Continue Reading
Disorder: The Rare Disease Film Festival Announces its Call to Entries for their Inaugural Festival
Set to take place in Boston on October 3, 2017, the festival  encourages filmmakers whose work addresses issues of concern to rare disease… Continue Reading
An Invisible Illness Survivor Turns Her Journey Into a Cinematic Resource for Patients
By Tasra Dawson My personal understanding of invisible illness started at a crosswalk in Atlanta during October of 2011. I was on a business… Continue Reading
Keep Your Eyes on This Rare Disease Documentary Kickstarter: Always in Hope
Always in Hope tells the story of the world’s “rare community” at a pivotal point in history when accelerating technologies are… Continue Reading
Taylor Stein’s New Documentary Reveals Son with Spinal Muscular Atrophy
Taylor Stein is ready for her close-up. The daughter of nightclub owner Howard Stein, and granddaughter of loan shark Ruby Stein, is the… Continue Reading
Film About Rare Disease Wins Russian Documentary Festival in New York
Roman Super’s ‘On the Tips of the Fingers’ impresses jury with tale of woman suffering from so-called ‘Butterfly Disease’.… Continue Reading
Actress Mary McDonnell gives Voice to Awareness of Menkes Disease In New Film
Academy Award nominated actress, Mary McDonnell, has lent her voice to a new documentary film depicting life with the rare disorder Menkes… Continue Reading
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