May 21, 2017
Project Alive: Documentary Series and Social Media Challenges Seek to Raise MPS Awareness
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April 7, 2017
Disorder: The Rare Disease Film Festival Announces its Call to Entries for their Inaugural Festival
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March 30, 2017
An Invisible Illness Survivor Turns Her Journey Into a Cinematic Resource for Patients
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March 17, 2016
Keep Your Eyes on This Rare Disease Documentary Kickstarter: Always in Hope
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December 16, 2015
Taylor Stein’s New Documentary Reveals Son with Spinal Muscular Atrophy
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October 20, 2015
Film About Rare Disease Wins Russian Documentary Festival in New York
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July 14, 2015
Actress Mary McDonnell gives Voice to Awareness of Menkes Disease In New Film
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July 7, 2015
Shire Launches Spotlight on Gaucher Film Contest and Calls for Video Entries Sharing Experiences of Living with Gaucher Disease
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June 11, 2015
Relapsing Polychondritis Awareness and Support Foundation Releases “RP The Ride of My Life”
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June 1, 2015
New Film on Huntington’s Disease “The Lion’s Mouth Opens” to Premiere on HBO June 1st.
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June 1, 2015
RARECast: Confronting Genetic Destiny in The Lion’s Mouth Opens
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March 12, 2015
New Video: Menkes Disease : Finding Help & Hope
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