Tag: Duchenne Muscular Dystrophy

A total of 75 posts are filed under Duchenne Muscular Dystrophy
Life Technologies a ‘Big Hit’ with Rare Disease Patients and their Families!
Life Technologies hosted rare disease families at the San Diego Padres Season Opener against the San Francisco Giants! What a great evening… Continue Reading
The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition
The Global Genes Project Aims to Battle Rare Disease Through The ‘Vote4Hope’ Campaign and Pepsi Refresh Competition Over 15 Million… Continue Reading
Pepsi Refresh Ideas that Help Kids
We are crowdsourcing ideas from the Pepsi Refresh ideas campaign. If you know of a pending idea that benefits kids with rare disease, please… Continue Reading
Searching for a Cure For Duchenne – Patient Perspective Podcast #1
In this first in a series of podcasts focused on rare disease patient advocates, we speak to Debra Miller, president and founder of Cure… Continue Reading
CureDuchenne Hopes FDA Will Accomodate New Class Of Muscular Dystrophy Drugs Upon Proof Of Safety
Seven years ago, we were a happy family with mom, dad and a beautiful 5 year old boy named Hawken.  We had noticed our son was unable to… Continue Reading
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