Tag: dyspraxia

A total of 1 post is filed under dyspraxia
Ava Is A Happy Girl Despite Her Daily Challenges With CDKL5 Gene Mutation
On a beautiful spring day in 2006, I caught my very first glance of RARE. I watched in horror as my precious daughter, Ava, had her first… Continue Reading
be-a-guest-blogger

Follow us on Twitter

Upcoming Events

Sep 14

Rare Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

Rare Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

Rare Patient Advocacy Summit

September 15 @ 8:00 am - 4:00 pm
Sep 15

Community Nominated Ceremony and Reception

September 15 @ 4:30 pm - 9:00 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

Rare Day of Beauty

September 16 @ 12:30 pm - 4:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm