June 11, 2013
Shire’s Rare Disease Impact Report
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May 1, 2013
Highlights from the World Orphan Drug Congress 2013
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April 30, 2013
The Importance of Patient Advocates for Orphan Drugs
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February 12, 2013
Wide Awake and Dreaming: A Memoir of Narcolepsy
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February 8, 2013
What Is Personalized Medicine?
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October 16, 2012
Undiagnosed Diseases Program Accepting New Patients
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October 15, 2012
The Open Notes Initiative: Both Patients and Doctors Benefit
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August 2, 2012
Rare Disease and Orphan Drug Leadership Congress – “No Disease is too Rare to Deserve Treatment”
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July 2, 2012
Genzyme Launches Global Rare Disease Advocacy Website Called ‘Genzyme Rare Community’
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August 1, 2011
Can a Patient Ever Know Too Much?
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