September 11, 2013
Startup Ultragenyx Snags PiII Program for Growing Rare-Disease Pipeline
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July 10, 2012
Historic Legislation Signed by President Obama To Help Patients with Rare Diseases
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May 10, 2012
HR 5651, the Food and Drug Administration Reform Act of 2012
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September 13, 2011
A RARE DISEASE PATIENT PERSPECTIVE – Roy Zeighami
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August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
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August 19, 2011
EVERYLIFE Foundation Blog – FDA Commissioner Appoints New Leadership
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July 8, 2011
Wall Street Journal ‘Health Blog’ Reports – GETTING MORE DRUGS APPROVED FOR RARE DISEASES
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July 5, 2011
A Rare Disease Pioneer Scores $45 Million for New Company – UltraGenyx
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March 22, 2011
RARE Artist Art Contest Winners Announced
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August 7, 2010
Announcing the Launch of RareArtist.org an Online Gallery for Artists Affected by Rare Diseases
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July 8, 2010
FDA and Rare Disease Drug Development, from FDA Week
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June 25, 2010
FDA Hearing on Rare and Tropical (Neglected) Diseases
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