Tag: Eurordis

A total of 9 posts are filed under Eurordis
Rare Diseases International Policy Event, Geneva
To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership… Continue Reading
Synageva BioPharma Joins NORD, Eurordis and Global Genes Project in Support of Rare Disease Day 2013
Synageva BioPharma Corp. (Synageva), a clinical stage biopharmaceutical company developing therapeutic products for rare diseases, joins the… Continue Reading
FMD Chat Connects With RareConnect
Those affected by fibromuscular dysplasia around the world now have a new option through which to interact with one another as the result of… Continue Reading
It’s a Wrap – World RARE Disease Day 2012 Success
The 5th Annual World Rare Disease Day took place February 29, 2012, with a fanfare of activities worldwide!  Sponsoring organizations like… Continue Reading
Wear That You Care Campaign Success at World Rare Disease Day 2011
It’s a Wrap – Rare Disease Day 2011. DANA POINT, Calif. – The 4th Annual World Rare Disease Day took place February 28, 2011 with a… Continue Reading
Shire Supports World Rare Disease Day 2011 and Long Term Commitment to Rare Disease
Global Initiatives Underscore Company’s Long-term Commitment to the Rare Disease Community Lexington, Massachusetts, USA 28th February… Continue Reading
The Road to Diagnosis: Stories from Patients with Rare Diseases
In recognition of International Rare Disease Day 2011, Inspire has compiled first-person narratives in a new report, The Road to Diagnosis:… Continue Reading