April 4, 2017
Town Hall Launch Gives Platform for Patient Advocacy – Will You Inbox Your Reps?
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February 7, 2017
Celebrate World Rare Disease Day by Changing Your Profile Picture
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May 25, 2016
Rare Parenting: Is My Facebook Profile My Identity? (Even When I Don’t Tag the Pictures of Me In the Wheelchair?)
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July 1, 2015
#15ForRare Contests Spreads Awareness of Rare Disease!
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February 14, 2015
KFS Patient Joined Group Looking For Support But In The End Found Love
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February 12, 2015
Join the Facebook Event for World Rare Disease Day 2015!
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July 11, 2014
“When Neuropathy and Fibromyalgia Overlap” Facebook Chat Happening 7/16
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March 14, 2014
World Rare Disease Day Recap 2014: Pakistan Celebrates!
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January 30, 2014
“Staying Active With Neuropathy” Chat, February 12th
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December 28, 2013
RARE Share: How Have Your View Changed Since Caring for Someone with a Rare Disorder?
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December 25, 2013
Kristen Johnston Has Rare Autoimmune Disorder, Opens Up On Facebook
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November 22, 2013
Ehlers-Danlos Patients Bond on Facebook – Then End Up as Hospital Roommates
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