April 30, 2016
Introducing the Path To Hope Campaign in Response to FDA Decision on Eteplirsen
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July 13, 2013
Rare Disease White Paper Open for Public Comment
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November 13, 2012
Rare Disease Congressional Caucus Briefing Action Alert
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September 7, 2012
RareVoice Awards Gala Hosted by the Rare Disease Legislative Advocates Seeks Nominations for Patient Advocates and Congress Staff/Members
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June 28, 2012
FDA User Fee Bill Is Landmark Legislation – Major Wins for the Rare Disease Patient Community Led by RDLA
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