November 27, 2015
FIRST Opens Registration for National Conference (6/24-6/25)
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August 31, 2015
Meet the Team at the Foundation for Ichthyosis and Related Skin Types
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May 11, 2015
May is #IchthyosisAwarenessMonth
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February 27, 2015
Rare Skin Disease Foundation & Award-Winning Photographer Produce Ichthyosis Video on World Rare Disease Day
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January 22, 2015
FIRST & Foremost: Are You Ready to Meet with Your Rare Disease Doctor?
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November 29, 2014
FIRST & Foremost: The Power of Personal Connection with Program Director, Moureen Wenik
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May 28, 2014
WebMD Highlights Story of Daughter Born with Harlequin Ichthyosis
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May 15, 2014
#IchthyosisAwarenessMonth: Share Your Story, Educate Your Community, Share Online
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April 13, 2014
Brian Gass, Affected With Ichthyosis, Will Travel 2,650 Miles
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January 25, 2014
Irish Toddler Battles Harlequin Ichthyosis
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December 26, 2013
A Passion for Patients: FIRST Goes to Yale
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December 9, 2013
Upcoming FIRST Family Conference this June in Indiana
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