March 7, 2014
Urge the FDA to Say YES to Accelerated Approval For Therapies For Duchenne.
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January 5, 2014
Meeting: Characterizing and Communicating Uncertainty in the Assessment of Benefits and Risks of Pharmaceutical Products
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December 30, 2013
Keck Medicine Physicians First to Implant Epilepsy-Controlling Device
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October 27, 2013
FDA Sets Up New Rare Disease Research Fund
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March 11, 2013
FDA Reform Can Lift U.S. Economy
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October 25, 2012
CureTheProcess Seeks Survey Participation for Phase II: Deadline October 26
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September 25, 2012
FDA To Hold Series of Public Meetings To Pick 20 Diseases To Focus on Over Next Five Years; Few Rare Diseases On Preliminary List
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January 5, 2012
World RARE Disease Day at National Institutes of Health
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December 27, 2011
Do It Yourself Drug Development, With Some Help! – Wall Street Journal Reports
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August 26, 2011
Guest Blog Scientific American – Innovation in Medical Diagnositics Saves Lives
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July 5, 2011
‘THE HILL’ Reports: Help children with rare diseases get the new medicines they need
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