July 28, 2016
New Webinar on Patient Navigation: Care Coordination Meets Peer Support
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November 4, 2013
China Dispatch: Rare Disease Epidemiology
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October 23, 2013
Reminder: Rare Registries Webinar Today
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October 17, 2013
RARE Webinar: Understanding Registries, Part 2
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August 19, 2013
The Genetic Alliance Hosts Livestream on “Beyond the Bloodspot–The Changing Landscape of Screening”
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June 28, 2012
FDA User Fee Bill Is Landmark Legislation – Major Wins for the Rare Disease Patient Community Led by RDLA
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January 5, 2012
World RARE Disease Day at National Institutes of Health
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September 26, 2011
Health and Human Services Secretary Adopts New Recommendation on Newborn Screening
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July 25, 2011
Washington Post Supplement sheds light and insights into the world of rare disease
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March 11, 2011
Genetic Diseases In Children (GDC) Conference – A Grand Slam!
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February 10, 2011
A Can’t Miss Conference This March – Genetic Diseases In Children – NYC
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October 7, 2010
Patients 2.0, the growing demographic of networked patients
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