Tag: global genes

A total of 135 posts are filed under global genes
Global Genes and EveryLife Foundation Announce First-Ever RARE on the Road – Rare Disease Leadership Tour
 Leading rare disease patient advocacy organizations Global Genes – Allies in Rare Disease and the EveryLife Foundation for Rare… Continue Reading
Denim Dash 2017: Complete Your Virtual 5k for Rare Awareness
This April, Global Genes is asking you to show that you Care About RARE by participating in the third annual Virtual Denim Dash 5K! Dashers… Continue Reading
Global Genes® and Festival of Children Foundation Announce First RARE Carousel of Possible Dreams
Global Genes, a leading rare disease patient advocacy organization, and Festival of Children Foundation are proud to announce the first-ever… Continue Reading
The Balancing Act’s Ongoing “Behind the Mystery: Rare and Genetic Diseases” Series Features Rare Disease Day Episode on February 28th
One in every ten Americans has a rare disease.  It’s a startling statistic, but it’s one that will help even the healthiest of… Continue Reading
Nicole Boice Interviewed on Two Disabled Dudes’ Podcast on Evolving Needs of Rare Advocates
Global Genes CEO & Founder, Nicole Boice, was recently invited to be a guest on the Two Disabled Dudes’ Podcast. LISTEN TO THE INTERVIEW… Continue Reading
2017 RARE Patient Impact Grant Awardees
The RARE Patient Impact Grant Program offers support groups and nonprofits that care for patients affected by rare diseases the… Continue Reading
Global Genes® and Horizon Pharma plc Partner to Offer Nephropathic Cystinosis Scholarships
Scholarships Provide Opportunity for People with Nephropathic Cystinosis to Pursue Educational and Career Goals. Global Genes® and Horizon… Continue Reading