Tag: global genes

A total of 132 posts are filed under global genes
The Balancing Act’s Ongoing “Behind the Mystery: Rare and Genetic Diseases” Series Features Rare Disease Day Episode on February 28th
One in every ten Americans has a rare disease.  It’s a startling statistic, but it’s one that will help even the healthiest of… Continue Reading
Nicole Boice Interviewed on Two Disabled Dudes’ Podcast on Evolving Needs of Rare Advocates
Global Genes CEO & Founder, Nicole Boice, was recently invited to be a guest on the Two Disabled Dudes’ Podcast. LISTEN TO THE INTERVIEW… Continue Reading
2017 RARE Patient Impact Grant Awardees
The RARE Patient Impact Grant Program offers support groups and nonprofits that care for patients affected by rare diseases the… Continue Reading
Global Genes® and Horizon Pharma plc Partner to Offer Nephropathic Cystinosis Scholarships
Scholarships Provide Opportunity for People with Nephropathic Cystinosis to Pursue Educational and Career Goals. Global Genes® and Horizon… Continue Reading
Celebrate World Rare Disease Day by Changing Your Profile Picture
Step 1. Upload a photo Step 2. Pick a frame  Step 3. Resize image  Step 4. Preview and save your photo Step 5. Save your photo by… Continue Reading
New Toolkits by Global Genes Educate Patients on Gene Therapy and Health Insurance
Over the past few years Global Genes has been providing patients with easy to understand guides or “toolkits” on everything from… Continue Reading
Happy Holidays From Global Genes
Our greatest hope for you this year is that you’re home, out of the hospital, enjoying each day with family and friends. We know that… Continue Reading
be-a-guest-blogger

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm