Tag: global genes

A total of 99 posts are filed under global genes
Chris Mann, Nestor Serrano, Jason George and Katrina Parker
Faircraft Records/Universal Republic Recording artist Chris Mann and Singer/Songwriter Katrina Parker to Perform at Global Genes | R.A.R.E Project’s Tribute to Champions of Hope™ Benefit
FOR IMMEDIATE RELEASE Actors Jason George, Nestor Serrano and Meagan Tandy will Serve as Celebrity Award Presenters; Henri Termeer, Former… Continue Reading
patient-advocacy-summit_comp2
Global Genes | RARE Project Host Patient Advocacy Summit at the Balboa Bay Club on September 28, 2012
Join Us September 28, 2012 9am to 3pm Balboa Bay Club, Newport BeachCA   Global Genes | RARE Project will host the first annual Patient… Continue Reading
Henri_Termeer_Rare_Disease_Drugs_Genzyme
Global Genes and R.A.R.E. Project Announce Tribute to Champions of Hope™ Gala to Honor Rare and Genetic Disease Pioneers, Innovators and Advocates
Henri Termeer, Biotech Legend and former President and CEO of Genzyme, To Receive Lifetime Achievement Award; Nominations Now Being Accepted… Continue Reading
Brayden_ABCA3_-Surfactant_Deficiency-
Fighting ABCA3 Surfactant Deficiency Since Day One – Meet Brayden
My name is Amanda Havens and my son Brayden Matheu Pearson was born with a rare genetic disease.  He was born with ABCA3 surfactant… Continue Reading
Rare_Disease_Genetic_Undiagnosed_Foundations_NIH
Rare Stories of Hope and Inspiration – Submit Yours Today
Thank you to all those who have submitted stories of hope and inspiration!  We’ve received many heartfelt stories from parents and… Continue Reading
Jean.Car_.Sticker.2-e1321474714314
Get a Global Genes Car Sticker – Simply Submit Your Rare Patient Story of Hope and Inspiration
We are looking for Patient Stories of Hope and Inspiration – to be shared with the world every day. Nothing can portray the fight, the… Continue Reading
synageva_logo
Clinical Development Program in LAL Deficiency By Synageva
LAL Deficiency, a lysosomal storage disorder, has early and late onset phenotypes, also referred to as Wolman Disease or Cholesteryl Ester… Continue Reading
Share Your Patient Story
i-wear-my-ribbon
be-a-guest-blogger

Follow us on Twitter