Tag: global genes

A total of 111 posts are filed under global genes
The_Rare_Daily
Letter From the Editor: Meet the RARE Daily
Welcome to the new and remodeled Global Genes blog—The RARE Daily! We’ve been working behind the scenes here to bring you a whole… Continue Reading
PatientSummit_Logo
Can’t Make it to our 2014 Patient Advocacy Summit? Yes You Can! Watch It LIVE!
Though seating may have been limited and is now sold out–there is plenty of room for you to join us for our special two-day event online!… Continue Reading
Kris Allen
‘American Idol’ Winner, Singer/Songwriter Kris Allen to Perform at 2014 Global Genes Tribute to Champions of Hope Gala
Over 600 patients, advocacy leaders, biotech and pharmaceutical executives, healthcare philanthropists and celebrities to gather… Continue Reading
TributeChampionsHope_Logo
Global Genes Hosts Third Annual Tribute to Champions of Hope Gala
ALISO VIEJO, Calif.–(BUSINESS WIRE)–On September 13th, 2014, over 600 attendees will gather at the Hyatt Regency Resort and Spa in… Continue Reading
Webinar2
Register for Part II of Our Navigating Insurance Issues Webinar
We knew you couldn’t get enough when it came to understanding insurance issues–so we declared a “Part II” to our informative… Continue Reading
GlobalGenesSixWordsContest
Can You Tell Your Rare Disease Story in Six Words? Enter and Win.
“For sale: baby shoes, never worn.” It was a six word story that Ernest Hemingway wrote that changed the idea that a great story… Continue Reading
patient information tracking
Accurate Diagnosis of Rare Diseases Remains Difficult Despite Strong Physician Interest
Research Published in The Journal of Rare Disorders Highlights Need for Improved Physician Education and Referral Programs Patients living… Continue Reading