Tag: global genes

A total of 100 posts are filed under global genes
Two Hearts Rock
Two Hearts Rock Aligns with Students to Assemble 5,000 Denim Ribbons
On Friday, November 9th, Kerry Hughes and Lori Butler of Two Hearts Rock joined District 95 students of Lake Zurich, Illinois, in assembling… Continue Reading
Chris Mann, Nestor Serrano, Jason George and Katrina Parker
Faircraft Records/Universal Republic Recording artist Chris Mann and Singer/Songwriter Katrina Parker to Perform at Global Genes | R.A.R.E Project’s Tribute to Champions of Hope™ Benefit
FOR IMMEDIATE RELEASE Actors Jason George, Nestor Serrano and Meagan Tandy will Serve as Celebrity Award Presenters; Henri Termeer, Former… Continue Reading
Global Genes | RARE Project Host Patient Advocacy Summit at the Balboa Bay Club on September 28, 2012
Join Us September 28, 2012 9am to 3pm Balboa Bay Club, Newport BeachCA   Global Genes | RARE Project will host the first annual Patient… Continue Reading
Global Genes and R.A.R.E. Project Announce Tribute to Champions of Hope™ Gala to Honor Rare and Genetic Disease Pioneers, Innovators and Advocates
Henri Termeer, Biotech Legend and former President and CEO of Genzyme, To Receive Lifetime Achievement Award; Nominations Now Being Accepted… Continue Reading
Fighting ABCA3 Surfactant Deficiency Since Day One – Meet Brayden
My name is Amanda Havens and my son Brayden Matheu Pearson was born with a rare genetic disease.  He was born with ABCA3 surfactant… Continue Reading
Rare Stories of Hope and Inspiration – Submit Yours Today
Thank you to all those who have submitted stories of hope and inspiration!  We’ve received many heartfelt stories from parents and… Continue Reading
Get a Global Genes Car Sticker – Simply Submit Your Rare Patient Story of Hope and Inspiration
We are looking for Patient Stories of Hope and Inspiration – to be shared with the world every day. Nothing can portray the fight, the… Continue Reading
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