Tag: hempel family

A total of 4 posts are filed under hempel family
CBS Reports: Twins With Rare Genetic Disorder Could Hold Clue to Cure Ebola
Chris Hempel has spent the last eight years fighting for the lives of her twin girls. Her 10-year-old daughters, Addi and Cassi, both have… Continue Reading
Ewing Marion Kauffmann Foundation Presents Here.Us.Now.  Friday, September 28, 2012 - 
7 p.m.
Kauffman Foundation To Screen “HERE. US. NOW.” Documentary at Harmony Gold Theater In Los Angeles
Foundation Commissioned Emmy Award-Winning Filmmaker Rudy Poe to Chronicle Challenges in Medical System Facing a Family Battling a Fatal… Continue Reading
Addi and Cassi Hempel suffer from Niemann Pick Type C disease
USA Today Spotlights Rare Family Fighting For FDA Approval To Treat Dying Twins
Advocating for your children can and does make a difference! On March 6, 2012, USA Today published an article spotlighting a brave family… Continue Reading
Washington Post Supplement sheds light and insights into the world of rare disease
Many Advocates, Industry, Parents, Advocacy Organizations have participated in the first in a series of Rare Disease reports being produced… Continue Reading

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