March 13, 2019
NDF Awards $700,000 in Grants for GNE Myopathy Research and Programs
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March 8, 2018
Rare Leader: Lale’ Welsh, CEO of the Neuromuscular Disease Foundation
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February 9, 2014
WRDD Event: Overcoming Challenges in Orphan Drug Development
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May 11, 2012
Bike for Kam: Paving the Way for Treatment for Hereditary Inclusion Body Myopathy (HIBM)
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June 21, 2011
Ultragenyx – Hereditary Inclusion Body Myopathy (HIBM) New Champion for Hope
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