August 30, 2016
“I Still Have Hope,” Mother Describes The Moment She Learned Her Baby Had Joubert Syndrome
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May 4, 2015
Heterotaxy Syndrome Awareness Day, May 4th
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March 21, 2014
World Rare Disease Day 2014 Recap: Cornwall Elementary
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March 5, 2013
Parents Raise Awareness About Rare Diseases
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