Tag: Hope

A total of 8 posts are filed under Hope
Influenced by Rare Disease Patients at the Tribute to Hope Gala, An Eighth Grader is Inspired to Write Her English Paper on Life and Hope
On the evening of September 27, 2012, Kate O’Connor attended the 1st Annual “RARE Tribute to Champions of Hope” benefit at the Balboa… Continue Reading
National Tay-Sachs & Allied Diseases Association (NTSAD) To Hold Second Annual Day of Hope
Organization: National Tay-Sachs & Allied Diseases Association (NTSAD) Submitted by: Diana Pangonis The National Tay-Sachs & Allied Diseases… Continue Reading
Joanna Has Hope Despite Suffering From Primary Immune Deficiency Disease (PIDD)
My name is Joanna and I was born with hypogammaglobulinemia, which is a Primary Immune Deficiency Disease (PIDD) and a genetic defect of the… Continue Reading
Systemic Scleroderma Patient Defies Odds And Educates Pharmacy Students on Rare Disease
My name is Melissa and I have had Systemic Scleroderma since the age of three.  Systemic scleroderma is an autoimmune disorder that affects… Continue Reading
Valentines Day: Hope, Heartbreak and Infantile Pompe Disease
In 2002 after years of trying, we were blessed with our beautiful son, Sean. When Sean was two and one-half months old, we began to notice… Continue Reading
7000 ‘Bracelets for Hope’ Huge Success Due To Donations By Jewelry Designers
The 7,000 ‘Bracelets for Hope’ campaign continues to raise awareness and give hope to families affected by rare disease! With over 700… Continue Reading
Ataxia-telangiectasia: Giving Hope
My niece Cayenne has A-T (Ataxia-telangiectasia), a rare childhood, progressive and degenerative disease that affects a variety of the… Continue Reading