October 17, 2011
50/50 and Neurofibrosarcoma
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October 17, 2011
The CLASS Act and Caregiver Village
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September 6, 2011
The Yellow Bird Project for #RareDisease / @MarbleRoad @YBP by @SarahGrothjan
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August 1, 2011
NeuroDetour: A Conversation with Melanie Miller
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July 4, 2011
The Flammable Heart Exhibition
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February 27, 2011
Rare Disease Day 2011: Research, Action and Impact
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February 10, 2011
Statement from Howard Liebers on Proposed Budget Cuts For Rare Diseases
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August 31, 2010
MarbleRoad Launch and Fundraising Event to Support Families Affected by Complex Illnesses
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July 25, 2010
The Tour de France and Testicular Cancer
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July 20, 2010
Organ Donors, Thalassemia, and Appropriations
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June 10, 2010
The Children's Rare Disease Network Launches Valuable Informational Blog
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June 2, 2010
Primary Care and HIT – What do they mean for you?
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