Tag: Hunter syndrome

A total of 23 posts are filed under Hunter syndrome
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For the Love of Terez in the Strength of Tyson: Hunter Syndrome
My precious Terez was born on March 30, 2002. His birth was a normal one, but at the age of two I was told he had scoliosis, and he also… Continue Reading
Bikers Ride for Little Heroes Born with Rare Diseases
Before hundreds of bikers in leather jackets rumbled through the streets of Bergen County in his honor, double amputee Kayden Kinckle, 3,… Continue Reading
9-Year-Old Fights Spinal Meningitis and Hunter’s Syndrome
Jason Leider, a 9-year-old Elmwood Park boy with a rare and deadly genetic disease, had surgery Tuesday evening after developing an… Continue Reading
Project Alive Campaign Moves Hearts (and Wallets) of Moms…Dads…and Celebrities
Case Hogan brought home a picture from his kindergarten teacher that said he wanted to be a fireman. Most parents would “ooh and aah.”… Continue Reading
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ArmaGen Announces Collaboration with Shire to Develop Treatment for Hunter Syndrome
ArmaGen, a privately held biotechnology company focused on developing revolutionary therapies to treat severe neurological disorders,… Continue Reading
Hunter Syndrome Patient, Parents Meet with Health Minister to Discuss Rare Disease Treatment
The parents of 12-year-old Arian Chowdhury, who suffers from a rare genetic disease, plan to meet union Health Minister Harsh Vardhan to… Continue Reading
Zumbathon® Charity Event for Hunter Syndrome on March 1st in Texas
Company Hunter Syndrome Foundation Email admin@huntersyndromefoundation.org Location of Event Prosper, TX Relevant Website… Continue Reading