Tag: Hunter syndrome

A total of 21 posts are filed under Hunter syndrome
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9-Year-Old Fights Spinal Meningitis and Hunter’s Syndrome
Jason Leider, a 9-year-old Elmwood Park boy with a rare and deadly genetic disease, had surgery Tuesday evening after developing an… Continue Reading
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Project Alive Campaign Moves Hearts (and Wallets) of Moms…Dads…and Celebrities
Case Hogan brought home a picture from his kindergarten teacher that said he wanted to be a fireman. Most parents would “ooh and aah.”… Continue Reading
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ArmaGen Announces Collaboration with Shire to Develop Treatment for Hunter Syndrome
ArmaGen, a privately held biotechnology company focused on developing revolutionary therapies to treat severe neurological disorders,… Continue Reading
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Hunter Syndrome Patient, Parents Meet with Health Minister to Discuss Rare Disease Treatment
The parents of 12-year-old Arian Chowdhury, who suffers from a rare genetic disease, plan to meet union Health Minister Harsh Vardhan to… Continue Reading
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Zumbathon® Charity Event for Hunter Syndrome on March 1st in Texas
Company Hunter Syndrome Foundation Email admin@huntersyndromefoundation.org Location of Event Prosper, TX Relevant Website… Continue Reading
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Dirk Nowitzki to Donate to Rare Disease Research
Dirk Nowitzki will donate $20 for every two-pointer the Dallas Mavericks make for a month to research of a rare disease, he said recently.… Continue Reading
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Health Policy Forum: Rare Diseases, Patients, Care and Cures: 12/11/13, New Jersey
 Health Policy Forum: Rare Diseases, Patients, Care and Cures Will a treatment be developed in time to extend the lives of young Jason and… Continue Reading