Tag: Hunter syndrome

A total of 21 posts are filed under Hunter syndrome
9-Year-Old Fights Spinal Meningitis and Hunter’s Syndrome
Jason Leider, a 9-year-old Elmwood Park boy with a rare and deadly genetic disease, had surgery Tuesday evening after developing an… Continue Reading
Project Alive Campaign Moves Hearts (and Wallets) of Moms…Dads…and Celebrities
Case Hogan brought home a picture from his kindergarten teacher that said he wanted to be a fireman. Most parents would “ooh and aah.”… Continue Reading
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ArmaGen Announces Collaboration with Shire to Develop Treatment for Hunter Syndrome
ArmaGen, a privately held biotechnology company focused on developing revolutionary therapies to treat severe neurological disorders,… Continue Reading
Hunter Syndrome Patient, Parents Meet with Health Minister to Discuss Rare Disease Treatment
The parents of 12-year-old Arian Chowdhury, who suffers from a rare genetic disease, plan to meet union Health Minister Harsh Vardhan to… Continue Reading
Zumbathon® Charity Event for Hunter Syndrome on March 1st in Texas
Company Hunter Syndrome Foundation Email admin@huntersyndromefoundation.org Location of Event Prosper, TX Relevant Website… Continue Reading
Dirk Nowitzki to Donate to Rare Disease Research
Dirk Nowitzki will donate $20 for every two-pointer the Dallas Mavericks make for a month to research of a rare disease, he said recently.… Continue Reading
HealthCare Institute of New Jersey
Health Policy Forum: Rare Diseases, Patients, Care and Cures: 12/11/13, New Jersey
 Health Policy Forum: Rare Diseases, Patients, Care and Cures Will a treatment be developed in time to extend the lives of young Jason and… Continue Reading