November 30, 2015
Inspiring Twenty-Two Year Old from Hong Kong Conquers Rugby, TEDx and Looks to Put End to Shock Videos
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May 11, 2015
May is #IchthyosisAwarenessMonth
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January 10, 2015
Baby’s Rare Disease Makes Hugging Too Dangerous
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May 15, 2014
#IchthyosisAwarenessMonth: Share Your Story, Educate Your Community, Share Online
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April 13, 2014
Brian Gass, Affected With Ichthyosis, Will Travel 2,650 Miles
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December 26, 2013
A Passion for Patients: FIRST Goes to Yale
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December 9, 2013
Upcoming FIRST Family Conference this June in Indiana
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September 7, 2013
Are you a Young Adult With Ichthyosis? Support Group Forming!
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September 2, 2013
Patient Support Forum for Ichthosis Patients Taking Place in San Jose
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February 3, 2013
School Awareness Event – Rare Disease Day – Pennsylvania
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