July 11, 2010
Learning to balance privacy and the call of advocacy
June 29, 2010
Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace
January 4, 2010
How To Make A Genes Ribbon out of Jeans
December 23, 2009
New York Times Reports on Cystic Fibrosis Advancements
November 14, 2009
Rare Disease Research Conference at NIH in Jan. 2010, registration is close to…
September 8, 2009
Save the Date! Conferences of interest to parent advocates!
September 3, 2009
Nominate Your Rock Star of Science!
March 6, 2009
Survey says: Misdiagnosis of rare diseases is common