July 11, 2010
Learning to balance privacy and the call of advocacy
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June 29, 2010
Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace
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January 4, 2010
How To Make A Genes Ribbon out of Jeans
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December 23, 2009
New York Times Reports on Cystic Fibrosis Advancements
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November 14, 2009
Rare Disease Research Conference at NIH in Jan. 2010, registration is close to…
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September 8, 2009
Save the Date! Conferences of interest to parent advocates!
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September 3, 2009
Nominate Your Rock Star of Science!
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March 6, 2009
Survey says: Misdiagnosis of rare diseases is common
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