September 28, 2015
The Extraordinary Journey to Normalcy with Epidermolysis Bullosa
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December 26, 2014
Northern Ireland Holds New Rare Disease Meetings
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July 30, 2014
Ireland’s First Rare Disease Plan Published
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November 26, 2013
An Otherwise Typical Teen, With a Diagnosis of Dubowitz Syndrome, She’s 1 in 50 million
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