May 5, 2014
Amicus Announces Positive Data in First Fabry Phase 3 Study
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March 11, 2014
JPMorgan Dad Turns Biotech CEO in Quest to Save his Son
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September 25, 2013
Lance Legislation Designed to Help Patients with Chronic Diseases and Disabilities
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April 27, 2013
John Crowley Talks About the Fifth Prescription Drug User Fee Act
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August 5, 2012
The Importance of Patient Initiated Research and Virtual BioTechs
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August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
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February 27, 2011
Rare Disease Day 2011: Research, Action and Impact
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August 12, 2010
Improve FDA’s Rare Disease Review Process
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May 21, 2010
Rare Disease Congressional Caucus Announced
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January 4, 2010
Announcing Global Genes Project – Wear Jeans, Help Kids With Rare Diseases
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