March 9, 2015
RARECast: Why the OPEN ACT Could Greatly Expand Treatments for Rare Disease
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August 15, 2014
Patient Advocacy Summit 2014: Preparing for Success – Lobbying at the State and…
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March 3, 2014
Rep. Carter Raises Awareness for Undiagnosed Diseases with CAL Network Act
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January 27, 2014
Rare Disease Advocates to Gather in Washington, Are You Coming?
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September 25, 2013
Rare Disease Congressional Caucus Briefing Co-Hosted by Shire and RDLA
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May 15, 2013
ACTION ALERT: Ask Your Member of Congress to Join the Rare Disease Congressional…
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June 28, 2012
FDA User Fee Bill Is Landmark Legislation – Major Wins for the Rare…
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April 6, 2012
RARE ACTION ALERT – Accelerated Approval to treatments for rare disease patients
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