April 6, 2012
RARE ACTION ALERT – Accelerated Approval to treatments for rare disease patients
March 13, 2012
The Grassroots Movement Behind Ultra and Fast: Join the Movement!
November 22, 2011
ULTRA Orphan Act – Fast Track Treatments for Ultra Rare Diseases
August 19, 2011
EVERYLIFE Foundation Blog – FDA Commissioner Appoints New Leadership
December 30, 2010
RARE Artist contest deadline extended! Enter today!
August 7, 2010
Announcing the Launch of RareArtist.org an Online Gallery for Artists Affected by Rare…
July 20, 2010
Organ Donors, Thalassemia, and Appropriations
May 4, 2010
MarbleRoad Comes to the CRDN Blog
February 27, 2010
Blog for Rare, a success and follow-up!