April 6, 2014
Desiree: Much More Than Joubert Syndrome
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August 4, 2013
Therapy May Curb Kidney Deterioration in Patients With Rare Disorder, Methylmalonic Acidemia
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July 31, 2013
Rep. Herrera Beutler’s Baby Defies Odds of Usually-Fatal Condition of Potter’s Syndrome
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September 20, 2012
CRF Awards $1.6 Million in Cystinosis Research Grants
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February 27, 2011
Rare Disease Day 2011: Research, Action and Impact
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