Tag: kidney transplant

A total of 4 posts are filed under kidney transplant
Child with Microscopic Polyangiitis Receives Transplant from Surprise Source
A Madison girl is in a desperate fight against the clock. Lyla Carreyn is a preschooler who just wants to be like the other kids but needs a… Continue Reading
Mom Finds Baby Scarlett Has Holes and Pits on Body and Recieves Branchial-Oto-Renal Syndrome (BOR) Diagnosis
After her birth, Scarlett was home from the hospital less than 12 hours before we brought her back due to her lack of feeding and a sense… Continue Reading
Christian Billingsley – Atypical Hemolytic Uremic Syndrome (aHUS)
On February 7, 2012,  WWL-TV, the CBS affiliate in New Orleans, reported on Christian Billingsley, a 17-year old boy diagnosed with… Continue Reading
CNN Health – Mom claims in viral blog that disabled child denied transplant
(CNN) — Can a patient be rejected for a kidney transplant based on a developmental disability? A New Jersey mother alleges in her blog… Continue Reading
be-a-guest-blogger

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm